
Some of you have known about the journey of my little niece,
Ellianna Grace. There is something so special about this baby--she has held my heart since the very beginning of her little life. She was born on March 2
nd, 11 weeks before her due date. She has battled hydrocephalus since birth, along with many other medical issues, one after another. Several weeks ago, she underwent her 3rd brain surgery, during which a permanent shunt was placed in her brain to drain the extra fluid. Days after, she was home from the hospital and had finally seemed to turn the corner. She was showing signs of Cerebral Palsy, and with guidance from God, I had made the decision to take a year off from school to move to Colorado and help my sister with
Ellianna's care. As plans were finalized, I was so at peace about this decision and excited to see what God would do in me through this baby. But then the most drastic corner was turned. On Wednesday, July 13
th, my sister told me that Ellie had been weak and overall not well that day and was admitted to the hospital. After some surgeries during the night and more tests, everything seemed to be falling apart. By Thursday afternoon, my sister was calling me at work to tell me that Ellie had the worst kind of infection in her brain, spine, and blood. 50-60% of her brain tissue had already died and doctors were preparing us for her departure from this earth. As I passed the information on to my family, the words I was saying sounded so hopeless, so surreal. I left work, packed in about 5 minutes, and took off for my mom's. The next morning I headed to Colorado to be with my sister and her family. My main purpose was to offer them support and comfort, but I felt like I needed their presence as much as or maybe more than they needed mine. I made the trip to Colorado alone, and although that didn't seem ideal, it ended up being a blessing in disguise. The 7 hours I had alone with God while driving are something I will always treasure. My confusion and anger melted away to the assurance of His love for me. Since Ellie's death, all I had been able to pray was "God help me!" During that car ride, all I could say over and over again through my tears was, "You are so good!" As my perspective changed, I wrote a letter to Ellie that I read at her funeral. Here it is:
Dearest Ellie-I am so blessed to have been a part of your miraculous life. You are so tiny, yet you touched such a huge amount of people. There is something so very special about you. Like I used to tell your mommy, you have held a special part of me since the day you were born. I don’t think anyone has ever made me pray or plead for a miracle harder. And no one’s death has ever hurt so deeply as yours. At first, when you went to meet Jesus, I thought God had chosen not to give us a miracle. I told people we had lost you. But what I am not realizing is that God did give us a miracle. Every second of your life was and is a miracle, whether here on earth or in your glorious true home. Rather than being lost, you have been found. There will never be another uncertain day in your life. We don’t have to wonder what pain you are feeling, what milestones you may miss, or how you will live day-to-day life. We know where you are and though we can’t understand why, we know that God is good. Perhaps faith isn’t believing the worst won’t happen, but knowing that when it does, God is still victorious. And when God’s will is done, it isn’t the worst after all. The ache of your earthly absence is all but unbearable. But I am so happy for you. You were able to claim your royalty after such a short time in this fallen world. You are a Princess who will forever dwell in the presence of her King. You are so beautiful, cherished, and loved. I just know that your laughter is contagious, your smile is breath-taking, and your dance is flawless. I will always be your proud aunt.
All my love,
Aunt Mimi
I remember holding my sister when I arrived. All I could hear were our sobs and the voice in my head begging God to hold us. I remember cradling my nieces, ages 6 and 3 and wanting to save them from this nightmare. It is definitely one of the most painful experiences I have ever had. Yet, despite the agony, one word kept coming to mind as that nightmarish week wore on: Holy. In the midst of such darkness, God brought miracle after brilliant miracle. Here are a few of them:
Jacob's Salvation:
Ellie's older brother, Jacob (9), was away at camp when she died. My sister and her husband decided to let him finish out camp and then meet him there on the last day to share the news. On Saturday, they headed to the camp for breakfast, and then took Jacob to the chapel. They shared the sad news and as it turned out, Jacob had some news of his own: He had given his life to Christ during the week! I have been praying for this boy for years. In fact, many people have been. When he heard of Ellie's death, he flipped to 2 Corinthians 1:3-6 and asked to read it at Ellie's funeral. When he arrived home, more tears of mine came. But this time, they were tears of joy for this boy who was so very changed! God's timing is beautiful.
Ellie's older sister, Baylie, LOVES butterflies. When Ellie was taking her last breathes, her mom and dad told her to always send lots of butterflies for Baylie from heaven. Every afternoon after that, there was a huge yellow and black swallowtail butterfly that swooped into the backyard just for a moment. Every day. Without fail. On the day of the funeral, we were out front watching for the limo. The butterfly came early that day, and swooped around the front yard rather than the back.
More Butterflies:
Baylie has a butterfly garden. Every now and then, she receives a shipment of caterpillars and over 4 weeks, gets to watch them progress to butterflies. She got a shipment in the days before Ellie died, but was sad because the caterpillars were further along than usual. Sure enough, they formed their Chrysalis' within days. It normally takes 10 days for them to hatch into beautiful butterflies. However, on the painful morning of the viewing, we heard shouts from Baylie about her butterflies! Turns out they had hatched early! God gave this special little girl such a beautiful gift on one of the hardest days of her young life. Not to mention that Ellie's online obituary just happened to have butterflies (purple ones in fact--Ellie's color!) as a background, there were several butterflies dancing about during the grave-side service, and the Pastor said that an incredible amount of Monarchs had been flying past his office window all week.
The Rainbow:
The viewing was by far the hardest day for me and many others. When I walked in with my sister and her family to see that tiny body, we all just crumbled. I have never heard such heart-wrenching sobs. Later in the evening, some people were talking about a rainbow outside. I went outside to check it out and I could not believe my eyes. Over the city of Colorado Springs was the most vibrant, bright, vivid rainbow I had ever seen! The purple part, which is rarely seen, was just a tad brighter than the rest. I think I know why: Whenever Ellie was out in public in purple, people commented on how great she looked in it. Always. So purple became Ellie's color, her theme, a beautiful reminder of her. It's no coincidence that the purple stood out.
Ellianna's death hurts--deeper and different than any hurt I have felt before. I don't know why we had Ellie for such a short time. I don't know why God took her so suddenly, when months ago we may have been expecting it a little more. I don't understand why He had me change my plans, only to change them even more drastically. I don't understand it, but I don't have to. All I need to understand is that our God is good. So good. He is good when He gives life, and when He takes it. I know that the Bible is sprinkled full of verses about the blessing of trials, but there is nothing like living that blessing. The pain is still there--real, suffocating, almost unbearable at times. But God is still so present, whether in the beauty of a special rainbow, or simply His presence as I cry before Him. During the week, I felt an urge to wash my sister's feet. I didn't know why I wanted to, but I went ahead and did it. I guess I just wanted to be humbled before her. Pain is holy, and God has given her much of it. When God's people hurt, God is there. It's as if we are standing on holy ground. She obviously has been set aside as one of God's beautiful plans and pictures of comforting grace. And I as too feel the deep tug of sorrow and grief, I know that God has also set me aside for His purpose. I am broken-hearted. But God promises that He is near to the broken-hearted, and more than ever, I know that this promise is true. Sometimes the hurt of life takes my breath away. But even when I catch my breath, it is pulled away by the wonder and awe of what it means to suffer as a child of the King. How great is this God who pours out His love on His children!

Ellie's Rainbow

My niece, Baylie, and me taking in Ellie's rainbow
(Photos by: Tressa Stubbs. Used with permission.)